Wednesday, August 31, 2011

Either/Or

Mo brought home a book the other day.  This is monumental in itself, as he is not really a book-reading kinda guy.  He knows HOW to read, and he reads newspapers and online crap all day long.  He just never got into books the way I did.  I digress.

Anyway, this book was given to him by a co-worker.  It's an older book, written in the 1990's, about a woman who lost her naturally-conceived triplets due to premature labor, then two more pregnancies the same way.  This was in the late 70's/early 80's, and she was very young (19-22) at the time.  She then went on to have three successful pregnancies and three beautiful children.  The book is all about how she maintained her faith in God throughout the tragedies of losing her five babies.

The book was, obviously, very difficult for me to read.  It wasn't that it was overly-preachy, but more that it raised the same questions I grapple with every day.  Why would a loving God allow these babies to be conceived, just to be yanked away?  Why would he give babies to undesiring or undeserving parents, and not us?  She doesn't pretend to have any answers, thank goodness, just maintains that life is full of pain and misery and that it is all part of a grander plan.

My problem, of course, is the idea that it IS all part of a grander plan.  I think it's really easy to say that when you are on the other side.  When three living, breathing, children are sleeping in their beds underneath your roof.  When the pain and frustration are no longer echoing in silent rooms and a way-too-big house.  I'm not discounting her pain, or the pain of anyone who experiences a miscarriage or still-birth.  I know firsthand how much those babies were wanted, loved, and will always be missed.  But I also think it's part of the human condition to want to create order out of chaos, and that is why we will often look back on our lives and try to make sense out of why things happen the way they do.  We turn coincidences into divine providence, and assign meaning where there is none.

It also raised another issue for me, one I've struggled with silently for months now.  At the end of the book, as she is reaching out to others and realizing that she isn't the only one who has experienced this, she writes about how "her story is not my story."  And I feel that, oh-so-acutely these days.  The more I reach out into the blogosphere, searching for others "like me," the more isolated and alone I feel.  Not only am I continuously being lapped by my closest bloggy cohorts, but more and more of the blogs I find are written by women just starting out on their journeys.  And while I understand that to them it doesn't feel like just starting out, that two years absolutely can feel like an eternity, I also long to find someone who has been at it as long as I have, who hasn't yet figured it out, who still wonders what the final family portrait is going to look like.

Please don't misunderstand me.  My pain is not greater than anyone else's.  My frustration and anger are equaled by many, I'm sure.  I just wish I could find someone who is walking this path with me, someone whose story I can relate to.

And I think that's really what it boils down to.  It seems like so many in the ALI community are either/or.  Either we can't get pregnant without medical interventions, or we can't stay pregnant without medical interventions.  Loss is horrific, but even more so when you know that you CAN'T get pregnant again, at least not without considerable effort and cost.  Virtually all of the blogs I read are either IVF or RPL -- but not one of them has both.   And it just seems so unfair that we are saddled with both of these diagnoses.  We will never be one of those couples who stops trying and is blessed with a surprise natural pregnancy.  If we decide to live childfree, my friends, that's exactly what will happen.  And even if we decide to continue to pursue a pregnancy, well -- there's no guarantee there, either.

I would give anything to be one, or the other.  To be able to get pregnant, as many times as it takes, without spending every last penny we have.  Or, to have just one of our expensive treatments result in an actual live baby.  Maybe that sounds callous -- I don't mean it to.  Some of my biggest supporters have suffered more losses than I have, and I don't want to sound like I'm belittling those.  Each and every baby was wanted, and each and every loss was incomprehensible.  I certainly don't wish for more losses.  But the ability to try again -- I admit, I'm jealous of that.  I'm jealous of those who can have sex and get pregnant, even if those pregnancies are riddled with anxiety.  I'm jealous of those who do IVF, get pregnant, and carry to term.  Hell, I'm even jealous of those who have given up on treatments and are pursuing adoption -- they are, at least, making headway on this never-ending, winding path to parenthood.

Sometimes I feel like I'm walking where few have tread.  It's a lonely path, and no matter how hard I try not to, I keep thinking that "her story is not my story."  In doing so, I know I'm isolating myself, closing off opportunities for support and encouragement.  And yet, I can't help myself -- it pops up despite my best efforts to suppress it, to keep it stifled underneath proclamations of hope, and best wishes, and promises of a brighter tomorrow.

I've spent the better part of a decade being resentful, and jealous, and even bitter.  I don't want those feelings to define me.  And yet, what does, if not how I feel 95% of the time?  How do I "keep the faith" when all signs point to a life I am not willing to lead?  How do you stay positive in the face of tragedy?

16 comments:

  1. This comment has been removed by the author.

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  2. This is a beautifully written post. I started blogging to find a community of support, and as part of my therapy (my therapist actually recommended it) and I love looking at other's blogs, hearing their stories and getting advice. I agree with you, it's hard when it seems like everyone is passing you by though. we have chosen a slightly different journey of a more natural approach. We have taken IVF off the table, as there is no reason we can't get pregnant (and we have been once). But I struggle with the fact that we have been at this for 5 years and I struggle with seeing an end in sight. I too look at myself and my bitterness, anger and resentment and wonder what I will think someday when I look back at these years. I don't think I will be so proud of how I behaved. I also struggle with the faith piece greatly.

    Keep the faith and know you are not alone. Remember, you are a mother of 3 heavenly babies whom you will be reunited with someday!

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  3. That's very interesting. I've never thought about who lives in the Venn diagram wedge of IVF and RPL because...surprise...I don't. I do have to say that among the cohort I follow, several may be in the same category medically (whatever that may be - none of us knows!) but not experientially because they won't be pursuing IVF. (I may well be one of those myself.) So some of us who will never ever get pregnant are probably potentially in the same boat - but our experiences will be very different; we'll never experience even a little bit of pregnancy, but then, we'll never suffer the loss of a pregnancy - or the cost of an IVF procedure.

    None of this is helpful, I realize. I'm cataloging the RPL girls in my head and looking for people who've done IVF. I know Hedwig at Expat Barrenness lost one donor embryo (husband has azoospermia) but the second resulted in a live birth. Oddly, that's the only such example I can think of. There may be more, but not among the still-childless, or I would still be following them :).

    So while I can't really offer you much for your sample set, I can say, I do relate to the feeling of feeling that there's no one to relate to! I do like the girls who are in their second year of ttc - I do. But the whole "what treatment should I try first" experience is so different from the "what treatment should I try last" experience. Getting upset when FERTILE friends lap you is different from getting upset when INFERTILE friends lap you for the SECOND time, and different from cutting off your very last fertile friend from the "reliable confidant" list. It's not a superiority-of-suffering thing - it's just a difference of experience.

    In short - all of this is crummy.

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  4. I too am a RPL and IVF girl. I just finished IVF #3 (after multiple IUIs) and just went through my 5th loss in June. I have only been doing fertility treatments for 2 years but I have to agree with you that "RPL and IVF" is completely different than "RPL or IVF." I love when people say to me "well, at least you know you can get pregnant" or "you are lucky that you are able to do IVF." Oh really?? Lucky is not a word I would ever associate myself with.

    Stay strong. My thoughts are with you!

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  5. This is an amazing post. You don't need to feel like you have to explain why you don't find a cohort in women (like me) only in their 2nd year of trying. Your experience *is* different, and in many, many ways much harder - and that's okay to feel that, even though thinking that way can also feel isolating at times.

    What's amazing about reading your blog is that you have the strength to go on. I really admire you for that. I fall to pieces at much less. You are amazing!

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  6. *sticks hand up* oh oh oh me me me!! we are VERY similar, in fact when i think of who i relate to most in the ALI blogosphere it's probably you and one other. we've been trying for as long and have suffered RPL. while we haven't gone down the ivf route - if i were ever to get knocked up again, i probably wouldn't be able to carry that baby to full term without medical intervention.

    it IS hard to relate to others who are only a couple of years [i can say that because anything less than 5yrs IS only a couple of years into the journey when you're comparing it to double figures] into the journey. it is a real struggle to find someone else who has been at this for as long as us and still has empty arms because most don't.

    the thing that is a kicker for me is that i really don't have any children in my life, i don't have any nieces or nephews or anything like that, so on the whole, my life really is childfree - which sucks.

    sending muchos love my friend but i just wanted you to know that i sat here reading this nodding my head and knowing EXACTLY where you're at.

    xxxx

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  7. First of all I completely reject the notion that things happen for a reason or are a part of some cosmic order. Things just happen, for no reason at all,,, they just happen.

    As far as where you fit in within the ALI community. I don't think any of us really fit in. Our stories are all different.

    What binds us together is the struggle, and the pain, and the sadness. It's the experience that makes us similar, not the details.

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  8. My blog was an IVF/ RPL blog before I moved to adoption. If you had read my posts between May of 2010 and March of 2011 you would be reading EXACTLY what you see above. EXACTLY. So, I can understand the path completely. Of having to wait years between even getting pregnant- only to lose it. It's a double whammy. IF in and of itself is horrible. RPL in of itself is horrible. Multiple IVFs is horrible. But combine those three things- KABOOM. It's AWFUL.

    I guess, I am just a few steps ahead in finally deciding how to handle it. (i/e adoption.) But like I said, it took from 5/2010 to 3/2011 to make a decision. And I wrote many similar posts- about being sidelined and not feeling part of anything. Hell, I still write that time to time. Moving on to adoption doesn't make the pain any of that go away. My heart still aches when I see someone with RPL get pregnant- with joy for them and sadness for me. My heart questions its decisions/ wonders if my path is correct whenever I see someone with multiple IVFs finally stay pregnant. And even yesterday my post was about "WHY CAN'T we get pregnant- do I have endo?" Even though I am doing adoption. The pain is still there.

    I think over time, what I learned, is that it's rare (less than 15% of people doing IVF have 4 or more IVFs fail) and of those 15%, it's only a hair that have RPL too. So basically, what you're looking at is being less than 1% of the population. So it's no wonder you don't find many people with a common story- because suckingly enough- it's not common to have all three issues. I totally understand though, wanting to find someone who understands your pain completely. But I don't know if anyone could ever understand 100% what it was like for me, or to be you. This is tough.

    But, I am in that "lucky" less than 1% and other ladies are too. I guess the odds that are steps in our journey would overlap exactly is slim. But- I think the feelings of what we'be been through remain.

    Anyways, thinking of you, and while I am at a different place (though still baby-free), I understand your thoughts and emotions 100%. And also to say- IT SUCKS!

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  9. (Sorry for length. Geez, Jess, write a book. :P )

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  10. Yes, yes, yes.

    I'm not on exactly the same path, but I've done 5 IVFs, 3 transfers, had 2 pregnancies, and 2 miscarriages (chromosomal issues).

    I also completely reject the 'grander plan' notion - it's just bad luck and crappy diagnoses.

    And I remind myself that there's some perfectly fertile couple out there who will never get pregnant because they're doing the TTC equivalent of flipping a coin 1000 times and getting tails every single time. Statistics suck.

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  11. Oh Jo, I feel your pain so completely. While, no, I haven't been on my IF journey as long as you have, I feel the exact same way. All (not exaggerating. Literally, ALL) of the blogs that I started reading when we started our IF journey are now moms. As they experienced their successes, I began looking for new blogger to connect up with. Of that second round of bloggers, most are now parents also.

    When we started our IVF journey I was excited to find new bloggers to follow in this new area. Sadly, most of them have also moved on. Sometimes the deepest, harshest pain comes not from the negative itself, but from finding myself unable to relate to anyone. I'm left wondering how many other women are going to lap me before I find any sort of success.

    Add to my inability to get pregnant the fact that I had an ectopic last year. So if I am ever lucky enough to see a positive again, I won't feel that rush of excitement. I will constantly be thrown into a sea of worry, hoping that this pregnancy doesn't turn out like the last one.

    Even though your story is not my story, and vice versa, you aren't alone. We are here to listen to you, to help you up, and to just say, "I'm so freakin' sorry, Jo. This sucks so bad." While I don't know your pain exactly, I can imagine it and want to do whatever I can to make it hurt a little less.

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  12. Not everyone believes in a "grand scheme," and this doesn't mean we are not people of faith. Personally, I believe that God is there for us and helps us find meaning in the things we go through, but I cannot believe that God writes the script. That's me, though.

    I hope you find the support you need.

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  13. I don't believe in a Grand Plan made out for me by a supreme being. When it comes to biology, I don't think God, RE's, embryologists, or anyone else have any control over those little cells and how they work. I believe if there is a God out there watching us he/she is watching us from a distance. We make of life what me make of it. I can't believe that God would see all the suffering we go through and not help, but that's just my belief.

    It took me four years and three rounds of treatment to get pregnant, and then I miscarried. I had frozen embryos left, but my greatest fear was that there was something wrong with my embryos and that I would continue to miscarry. The whole not getting pregnant was one thing, but repeat pregnancy loss is something I can't do.

    I kept positive through the darkest IF days by knowing, not believing, but really KNOWING that there was more than one way to skin a cat, if I wanted to parent I would. I knew that if treatment didn't work, that my husband and I were willing to parent a foster child. I still think that someday I will, even if it's just respite care. Knowing what you're willing to do and how far you'll go are important. I don't know if you're familiar with Tertia's blog SoClose, or her book, but she went through at least a decade of treatment and pregnancy loss as well. She is probably the closest I can think of to your own journey. Her book and blog may inspire you, it inspired me.

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  14. I can't imagine what you're going through. Sure I had RPL, but when I actually ovulated I got pregnant easily. I know that I was incredibly lucky, but at the time it didn't feel that way.

    That's why I'm struggling to answer how I stayed positive, because I didn't. I crumbled. I turned into a raging alcoholic after each of my losses -- I actually have a picture of myself holding a nearly empty bottle of rum clothed in one of the snap side shirts I had bought for our first baby. And it got worse after each loss. You know the scene at the beginning of Leaving Las Vegas? Yep. Me. I managed to stop drinking, but every month I spent fruitlessly peeing on OPKs I got more and more depressed until I snapped. I alluded to it on my blog at the time, but last year at this time, despite increasing my antidepressant dosage, I was thisclose to suicide. I had a plan to make it look accidental. I was pricing life insurance policies and making sure accidental death was covered. I'd made my husband an online dating profile and was screening applicants to be his new wife. On a whim, I started the protocol that got me pregnant because why the hell not? I planned to be dead by the end of the year, so what was one more loss if it happened? But it stuck, and that was the only thing that saved my life.

    I don't know how to support you through this. But I do want you to know that I think about you often. That I hope great things happen for you very soon. And that I have more faith in your ability to cope and get through this hell better than I did. (((hugs)))

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  15. Sending lots of hugs your way. Things that I do to try to stay positive include: talking with select people, listening to music, exercising, going for long walks outside, and praying.

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  16. It is bloody hard. I'm one of those people (so far) that gets pregnant easily, but loses it. That, honestly, is not so bad, as struggling with infertility and then having RPL.

    But then, I have my own 'second whammy' to make my situation worse-I'm a single woman trying to TTC. I've never felt more lonely and scared than when I lost my pregnancies and realized there was nobody else to grieve like I was grieving for my babies. I was in it, despite my loving family, utterly alone. I look at woman with husbands, and I'm sad, that at this point in this struggle, I don't have that and I don't know if I ever will.

    What we have, we take for granted- what we don't have, we miss keenly, such is human nature.

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